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Palliative Care for Children with Cancer in MNJ IO RCC

The society in collaboration with IMPACT and NATCO Trust supports MNJ IO&RCC to lending the palliative care program for children with cancer and their familes. The objective is  to improve the quality of life of children and their families. The activies are as the following:

  1. Daily consultation by palliative care consultant.
  2. Psychosocial evaluation of children enrolled in the program.
  3. Psychosocial support of children and their families through out the course of illness starting from the day of diagnosis, curative treatment and then extending to the end of life care and bereavement.
  4. Explanation of treatment like radiation, chemotherapy etc involved, checking the medications taken and motivation of the family and the children to complete the treatment.
  5. Supporting the staff in alleviation of pain involved in treatment and different procedures.
  6. Supporting in arranging different blood products and investigations.
  7. Supporting the less privileged family with food, clothing and medication.
  8. Organizing Arogyashree and other governmental and non- governmental supports.
  9. Weekly support group meeting of parents and children.
  10. Social rehabilitation of the children, their siblings and parents.
  11. Recreational activities like painting, dance programs, magic show and singing.
  12. Patient follow-up by phone calls, networking with local RMPs, doctors and local support group.
  13. Documentation
  14. Networking with staffing and different departments of the hospitals.
  15. Participation in the team meeting.
  16. Teaching and mentoring of the students coming for training.
  17. Research

Outcome

  1. The program during the period of 5-months saw a total of 988 children
  2. The morphine consumption, which is a direct indicator of any pain relief program was approximately 59 gms.
  3. A total number of phone calls were 196
  4. 10 support group meetings were conducted.

The patient drop out decreased significantly and the overall compliance to treatment improved. The patient and the family are better prepared to undergo the process of such extended treatment and even to face occasionally the unfortunate events of death. The support is for the patient is almost round the clock, on the phone, even when they are discharged and have gone back to their remote villages.

One of the case studies of Pediatric Palliative Care Program
A young girl who was in remission and studying in the school was facing total social isolation in the form of children refusing to play with her, teachers making her sit separately in the class and refusing to give any extra attention to her. Mr Venkatesh, our social worker went all the way to her village in Nizamabad to speak to the principal of the school, teachers and to network with the local support groups. Theses kind of effort will go a long way in bringing those underprivileged children back to the main stream.


Volunteers spending time with a child


Children Support Group

     
 
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